Federal law guarantees every child a free, appropriate education, and the goal of the Individual Education Program (IEP) is to assure that every child with special needs receives what the law promises. But if you have a special ed child, you know that your family must make sure the school follows through.
This powerful book covers:
eligibility rules and assessments
working with outside experts
developing your child's ideal educational program
preparing for and attending IEP meetings
develop a blueprint of program and services
resolving disputes with school districts
Whether you're new to the IEP process or entering it once again, this user-friendly, plain English guide is your outline for an effective educational experience for your child.
The 8th edition of The Complete IEP Guide provides key forms, sample letters and resources you need at every stage of the IEP process. With it, you can make sure your child gets a good education—the education he or she deserves.
“The essential guide for any parent preparing for an Individualized Education Plan (IEP).” - Library Journal
“This guide is a godsend…” - New Orleans Times-Picayune
“Help[s] parents advocate for their child’s educational needs.” - Providence Journal
Lawrence Siegel has been a Special Education Attorney and Advocate since 1979, and has represented children with disabilities extensively in IEPs, due process, complaints, legal action and before legislative and policy bodies. Mr. Siegel has lectured and consulted with advocacy and parent groups throughout the country and is a member of the California Advisory Commission on Special Education. He has written special education legislation that has been adopted in several states and is the author of Least Restrictive Environment: The Paradox of Inclusion (LRP Publications, 1994). Mr. Siegel is the founder and Director of the National Deaf Education Project which works to ensure that the fundamental communication needs of deaf and hard of hearing children are part of the educational system. In 2004-5 he was appointed to an endowed chair at Gallaudet University in Washington, D.C. for his work as an advocate of special education. He lives in Fairfax, California, with his wife Gail.
Getting Help From Others.............................................................. 10
What Is Special Education?
The details and reach of the Individuals with Disabilities Education Act are remarkable—no other law in this nation provides such clear and unique legal protection for children. Congress first enacted IDEA in 1975 because public schools were frequently ignoring children with disabilities or shunting them off to inferior or distant programs. IDEA set forth a number of legal mandates for children receiving special education. The most important ones are:
Your child is entitled to a “free appropriate public education” in the “least restrictive environment.”
Your child is entitled to a comprehensive evaluation of his or her needs and the district cannot evaluate your child without your approval unless they take you to a due process hearing and prevail.
Your child’s is entitled to have a written individualized education program (IEP) that is developed by an entire team, including you and school representatives, on at least an annual basis.
Your child’s IEP must include measurable annual goals.
Your child is entitled to “related services” that will help your child benefit from his or her special education.
Your child is entitled to placement in a private school at public expense if the school district cannot provide an appropriate placement.
Your child is entitled to be educated as close to home as possible and in the school your child would attend if not disabled.
You can ask for a mediation and hearing before an impartial third party if you do not agree with the district about any component of the IEP, including even whether your child is eligible for special education.
Your child’s IEP cannot be unilaterally changed by your school district. First, you must agree to that change.
What Is an IEP?
The acronym IEP can refer to several different things:
the initial meeting that determines whether your child is eligible for special education (the IEP eligibility meeting)
the annual meeting at which you and school representatives develop your child’s educational program for the following school year (called the IEP program meeting), or
the actual detailed, written description of your child’s educational program.
The written IEP should include:
the specific program or class for your child (called “placement”)
the specific services (called “related services”) your child will receive, and
other educational components, such as curricula and teaching methods.
There is one major caveat, however, in the rights that IDEA grants to your child. IDEA does not require that the school district provide the best possible program. The program that is individualized for your child only has to provide an appropriate educational experience. An appropriate educational experience is one that is reasonable, given your child’s particular needs. For instance, you may feel that the private school across town would be the best for your child in terms of accelerating his or her growth. But if the district’s program can provide a reasonable chance at growth, the law does not require the district to pay for private school placement. Or, you may feel that although three hours of speech therapy a week will work, six hours would be great. IDEA does not require “great.”
The key to preparing to advocate for your child is to focus on showing that the program and services you seek are appropriate. This book will explain the crucial steps in doing so, including:
how to state your child’s needs as specifically and narrowly as possible, and how to make sure those needs are reflected in program components. For example, it is one thing to say “my child needs help with his expressive language”; it is quite another to say “he needs three hours a week of one-on-one speech help to work on his articulation and verbal pragmatics.” The first statement is much too broad; the second is specific and clearly states what assistance your child needs.
how to provide specific proof of your child’s needs, by using an evaluation, a report, or a testimony from an educator or professional who can specify what your child needs, why, and for how long.
how to provide the evidence that backs up your position. It is always best if someone inside your school district—whether the classroom teacher, service provider, assessor, or administrator—agrees with you about what your child needs. But because you may not always have that support, you may need an expert outside of the district to describe your child’s needs and recommend placement and services that will address those needs.
how to use the proof you gather in the IEP process and, if the IEP team fails to agree with you, how to present it in a due process mediation or hearing.
what to do when the district fails to follow the legal requirements set forth by IDEA.
IDEA Statutes and Regulations
The laws that govern special education under IDEA are primarily found in two places:
statutes enacted by Congress and codified in the United States Code beginning at 20 U.S.C. § 1400, and
regulations issued by the U.S. Department of Education and published in the Code of Federal Regulations beginning at 34 C.F.R. § 300.1.
The regulations clarify and explain the statutes. The statutes and regulations you need are are on this book’s Companion Page; see Chapter 16 for the link.
Being Your Child’s Advocate
This book also highlights the practical aspects of being an advocate for your special education child. While these may seem obvious, it is always helpful to be reminded. The tips below can make the difference in whether or not you obtain an appropriate education for your child.
Organization, Organization, Organization
The path to success begins with meticulous organization, starting with knowing when there should be an IEP meeting and keeping track of your child’s progress. File copies of all letters you write to the school district, as well as notes you make of what people say and when. For example, suppose your child’s teacher tells you on Wednesday afternoon that your child needs speech therapy. You ask why and he explains. When you get home, you sit down and record the details (the date, time, place, and content of your conversation). This information may be vital at the next IEP meeting, when the issue of speech therapy comes up.
Always Ask Why
If you don’t know, ask. And if an answer is provided and you don’t feel it explained things fully, ask again. You are not an expert in IDEA law, but you will know enough of it to recognize the key components. If something does not make sense to you, or if an administrator says, “Well, we just don’t do it that way,” ask why. If he or she refers to a law (a statute or regulation) or a policy, ask to see a copy of it. If that does not work, write a letter asking for the information. You might phrase it like this: “You said last week [date] that the district could not provide my child with a one-on-one aide, that it was district policy [or because of budget cuts, or because you didn’t think my child needed an aide]. I would appreciate it if you would provide me with the basis for that position. Is it part of the district’s written policy, is it your opinion, or is it part of the law? If so, please send me a copy of that law. Thank you.”
It is likely that sometime during your child’s years in special education, you will go to an IEP meeting or have a conversation during which someone from the school district says something that offends you or makes you angry. Please keep in mind that you are more likely to persuade the district of your position if you act reasonably rather than in anger. Of course, though you have to be true to you own style and there is nothing wrong with being emotional, blowing a gasket does not usually work and only signals that the discussion has come to a close. If possible, in these situations it is best to be clear, precise, and determined. Give your reaction but be as measured and calm as you can, as in “I know you would not want to deny students what they need, but I believe that the reports we have submitted are clear and there is no doubt that my daughter needs a one-on-one aide, two hours a day. Her teacher said as much. I think your position is not based on evidence and I do not appreciate your tone of voice or the manner in which you are treating us. I hope we can resolve this positively through the IEP, but if not I can assure you we will proceed as we must.”
Your Child’s Teacher
Your child’s teacher is your best potential ally. My personal view is that teachers are as important as any working group in our nation. They teach, counsel, police, nurse, and often work all day, most nights, and many weekends to help children develop. And they do it for lousy pay, while shouldering a ton of paperwork (especially if they teach special education students), along with pressures from their own administration.
Your child’s teacher knows your child better than anyone else in the school system. If you can work directly and positively with the teacher, you will have a strong ally at the IEP meeting. That does not mean that the teacher will always agree with you; in the areas that she does, however, her input is vitally important. Respect your teacher’s intelligence, motives, and time. Be reasonable in your demands.
Setting Realistic Goals
One of the hardest things a lawyer sometimes has to say to a family is that their IEP goals are not supported by evidence. As a parent, I understand how difficult this is to hear. But there’s no way around it: By looking at the evidence as objectively as possible, and recognizing when there is insufficient support for some or all of your goals, you will more effectively represent your child and eliminate wasted time and resources.
Remember as well that neither party to the IEP—not the parents nor the school district—has to agree to anything, no matter how powerful the support is or how effectively one side makes its point. Parents are often frustrated when the school administrator simply says “No, we don’t agree about that.” But you want to yell, “My child needs it, the support is there for it, how can you possibly say that!?” Each party to the IEP has the absolute right to make a decision and stick with it. Parents who remain dissatisfied with the school’s position do, however, have a next step: They can challenge the school’s factual conclusions (such as whether your child is eligible) through mediation (see Chapter 13); and they can challenge the school’s interpretation of the law by filing a complaint (see Chapter 14).
If your child has learning disabilities. Nolo publishes a specialized version of this book just for parents of children with learning disabilities. Nolo’s IEP Guide: Learning Disabilities, by Lawrence M. Siegel, addresses issues of particular concern for children with learning disabilities, including commonly used evaluations, special eligibility requirements, teaching methodologies, and more. If your child has learning disabilities, you’ll want to use this more specific resource. Nolo will be happy to exchange this book for a copy of Nolo’s IEP Guide: Learning Disabilities. Simply call 800-728-3555 Monday through Friday, 9 a.m. to 5 p.m. PST, and one of our customer service representatives will be happy to help.
Getting Help From Others
Other parents, local groups, and regional or national organizations can be of great help as you wend your way through special education. The amount of information these folks have is amazing. Other parents and parent groups can be your best resource. Parents who have been through the process before can help you avoid making mistakes or undertaking unnecessary tasks. Most important, they can be a source of real encouragement. Chapter 15 provides further thoughts on making use of your local special education community.
Note: Reference is made throughout this book to parents, but the term is used to include foster parents and legal guardians.
What This Book Doesn’t Cover
This book focuses on the rights and procedures for children between the ages of three and 22. Other important issues fall beyond the scope of this book. These include:
procedures for children under three
transition services that help children prepare for a job or college, including independent living skills, and
discipline issues including suspension and expulsion.
Use the resources in Appendix B to get more information and support on these issues. (See Chapter 16 for the link.) If you need help, especially for the complex issue of discipline, you should contact a special education attorney. (See Chapter 14.)